PUBLIC MISPERCEPTIONS OF NARCOLEPSY LEAD TO DELAYED DIAGNOSIS AND TREATMENT.

Why we raise awareness

Because of low awareness (even among physicians) and misperceptions, there is an average of 8 to 15 years between narcolepsy symptom onset and diagnosis.

It’s estimated that the majority of people with narcolepsy are currently undiagnosed or misdiagnosed. Common misdiagnoses include epilepsy, depression, and schizophrenia.

Let’s work together to transform lives!

01

Bridging the Gap Between Patients and Doctors

Narcolepsy is often misunderstood and misdiagnosed, leaving many patients without proper care. Our awareness campaigns aim to connect patients with informed healthcare professionals, shortening the diagnostic journey, avoiding misdiagnoses and improving treatment outcomes.

02

Ending Stigma in Schools

Children with narcolepsy often face stigma from peers and teachers. By raising awareness, we advocate for supportive learning environments that enable affected students to excel academically, pursue their dreams, and enjoy a fulfilling childhood.

03

Promoting Public Awareness

Public education is key to dispelling myths about narcolepsy. Through outreach, we address misconceptions, fostering empathy and understanding in communities across Kenya.

04

Educating Physicians

Many healthcare providers lack familiarity with narcolepsy, leading to delays in diagnosis. We focus on equipping physicians with knowledge to identify symptoms early and ease the diagnostic process.

05

Strengthening Family Relationships

Families of individuals with narcolepsy often face misunderstanding and strain. We offer resources to improve family dynamics and end judgment rooted in misinformation.

06

Challenging Cultural Misconceptions

In Kenya, cultural beliefs can misinterpret narcolepsy symptoms. Our campaigns aim to dismantle these perceptions, promoting accurate understanding and acceptance.

07

Supporting Workplace Accommodations

Narcolepsy doesn’t define capability. We advocate for flexible workplace policies to empower individuals to excel professionally while managing their condition effectively.

For more information and resources, please visit Narcolepsy Network and Wake Up Narcolepsy. Please also download our free, printable Narcolepsy Fact Sheet for a handy resource to share with friends, family, and medical providers.